Your help is desperately
needed to establish a Chronic Pain Patient Registry
This is a grassroots
campaign and our mission a is to create awareness to the plight of those who
lives are consumed by the devastating effects of chronic pain syndrome. People
who, by injury or illness, constantly suffer from excruciatingly high levels of
pain. Having to endure such high pain levels, has a devastating effect on the
lives of the chronic pain patient, their families, loved ones and friends.
Please use this sample letter, to copy and/or edit to add
your own statement. Then send it to your
legislators, implore them to author and sponsor a bill
that would establish a Chronic Pain Patient
Registry. For further information please contact, R. Zeke Fread, Organizer
of the campaign to enact
Sincerely
R. Zeke Fread
Coordinator & Organizer
Tampa Bay Coalition &
Organizer
Chronic Pain Patient Registry Campaign
PLEASE SUPPORT THE CHRONIC PAIN PATIENT
REGISTRY:
There is a surprisingly large, and often greatly misunderstood
epidemic among Americans whose daily lives, due to injury or illness, are
consumed and often destroyed by excruciatingly high levels of pain. Such people
are now diagnosed, and referred to by medical professionals, as Chronic Pain
Patients, or "CPP's".
The majority of all CPP's have undergone, and have
not responded to, all available medical procedures and treatment protocols to
alleviate the high level of pain they suffer. Their condition is therefore
considered permanent, or "chronic", and the only effective treatment in
alleviating their constant, relenting level of pain is
the use of pain
medication ,or narcotics. The most common pain medications prescribed by
Physicians and Pain Management Specialists contain Opioids and have very
effective analgesic or pain relieving properties - some examples of which are
Darvon; Propoxyphene, Dilaudid; Hydromorphone; OxyContin; Oxycodone, Vicodin and
Hydrocodone. All of these pain medications are strictly regulated, as they
should be, by the Food and Drug Administration, (FDA).
However, as a
result of attempting to curb the abuse by those who do not require such
medications for their intended purpose of relieving severe or chronic pain,
CPP's have been left to suffer needlessly and unfairly. Because many Physicians
and Pain Management Specialists are fearful of being investigated or possibly
losing their license, CPP's are either not being prescribed much needed
medications at all, or are given doses totally insufficient to adequately
alleviate their high levels of chronic pain.
There is a very important
fact which is greatly misunderstood, but is supported by numerous studies [would
help to refer to some here]. When pain medications are taken by someone who is
suffering severe or high levels of pain, their body breaks down the medication
much differently than those who are not in pain. A feeling of euphoria, or
"getting high", leads many people to abuse these medications, rather than the
intended purpose of pain relief. Much to the contrary, chronic pain
sufferers do not experience any euphoria or "high". What they do experience is a
valuable reduction, or manageable level to their chronic pain.
A
Chronic Pain Patient Registry would serve as a qualified listing of only those
who have been thoroughly evaluated and who's ongoing chronic pain condition has
been fully documented. The Food and Drug
Administration would recognize the
pain medication and dosage being prescribed is that for a verified CCP. This
would alleviate the need to investigate Physicians and Pain Management
Specialists prescribing pain medication for possible abuse by non-chronic pain
sufferers, as well as address the fear by medical professionals of losing their
medical license or facing severe disciplinary action. CPP's would greatly
benefit by receiving adequate pain medication required to help alleviate and
control the high levels of pain which they endure on a daily
basis.
Thank you very much for taking the time to read this
letter.
Respectfully yours,
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