Tampa Bay Coalition
Posts this Media Release in Support and on Behalf
of;
Florida AIDA
Action
FLORIDA AIDS
ACTION
Tampa:
813-232-5886
Tallahassee: 850-656-7760, ext. 300
Miami:
305-891-3666
Washington, DC: 202-299-9430
FOR IMMEDIATE RELEASE
MEDIA CONTACT: Mary Ann T. Green 813-974-4892/ mgreen@floridaaidsaction.org
National ADAP Monitoring
Report Substantiates Need
Washington, DC - In response to
yesterday's release of the National ADAP Monitoring Report, Florida AIDS Action
(FLAA) calls upon elected officials to address the growing medical crisis in our
nation, with an emphasis on the need for additional funding for the AIDS Drug
Assistance Program (ADAP).
According to Dr. Gene Copello, Executive
Director of Florida AIDS Action, "This report clearly shows that ADAPs across
the nation continue to face challenges, as do other medically-based programs
such as Medicaid, Medicare and the Ryan White CARE Act in regards to medical and
support services. It's imperative that these issues be addressed before more
individuals loose access to life saving programs."
ADAP is designed to
provide uninsured and underinsured individuals living with HIV/AIDS access to
life saving prescribed medications. More than 80,000 individuals access ADAP
across the nation, including the District of Columbia, US Virgin Islands, Puerto
Rico, Guam and Marshall and Mariana Islands, at a given time.
"As it
stands," explains National ADAP Working Group Chair Bill Arnold; "we need an
additional $145 million immediately to keep ADAPs adequately afloat for the
remainder of this fiscal year." He further details the problem, "And, if we
don't get emergency supplemental appropriation help for FY '03 we will need at
least an additional $283 million more in the
FY 2004 Federal Budget in order
to alleviate what will, by then, be disastrous waiting lists and curtailed ADAP
programs all over the United States."
According to the report, which was
released during a conference call hosted Wednesday by the Kaiser Family
Foundation, 54 of the 56 ADAP programs surveyed responded, revealing that during
June of 2002 alone:
· 80,035 clients were served
· 257,279
prescriptions were filled
· Minorities comprised 50% of persons accessing
ADAP while white-non Hispanics represented the single largest group accessing
care at 37%
Furthermore, the results note that the majority of persons
accessing ADAP were uninsured -- 10% reported coverage by Medicaid, 6% by
Medicare and 13% had some level of private insurance.
"Changes to
Medicaid will lead to more persons accessing ADAP, resulting in more states
resorting to cost containing measures such as changing eligibility requirements
or creating waiting lists. In the end," explains FLAA Director of Government
Affairs and Advocacy Jesse Fry, "individuals living with HIV/AIDS will suffer
needlessly."
Despite increases in the ADAP budget over time and an
overall slowing in actual numbers of clients served by ADAPs over the past 7
years, the fact remains that the program is not keeping pace with the current
need in many states. In fact, ADAP expenditures continue to increase based on
several factors:
- Individuals with HIV/AIDS remain in care for longer
periods of time due to the effectiveness of treatments
- New HIV infection
rates remain steady at 40,000 annually
- The increasing demand for services
as agencies provide outreach and testing to at-risk
populations
Compounding the crisis are more recent issues such as:
federal and state budget deficits; cuts to state Medicaid programs (45 states
have pharmacy cost cutting factors in place); rising populations of uninsured
and unemployed individuals; costs of prescribed medications to fight AIDS and
the side effects of many AIDS medications, including new and expensive AIDS
treatments such as T20/Fuzeon; as well as the impact of the Centers for Disease
Control and Prevention's (CDC) new initiative which calls for increased HIV
testing and use of rapid tests to identify more individuals living with
HIV/AIDS.
FLAA Board Member Valerie Mincey details, "If we are
increasing the number of people accessing services, through expanded testing
programs and cuts in other healthcare programs, then we have to increase funding
for the program or programs that are expected to carry the burden of care for
these newly identified individuals - ADAP needs must be addressed."
The
National ADAP Monitoring Report also details that as of February 2003, 16 states
reported implementing one or more program restrictions and nine of these states
had waiting lists while four more programs "anticipated the need to implement
new restrictions in FY 2003, including three that already had at least one
restriction in place."
"The private sector is already taking action,"
notes Murray Penner, Director of Care & Treatment Programs with the National
Alliance of State and Territorial AIDS Directors (NASTAD). "ADAPs have already
realized savings of approximately $25 million through negotiations with five
pharmaceutical companies and we are still in negotiation with three companies
that represent 60-70% of ADAP expenditures." He adds, "We hope and believe that
industry will continue to provide rebates and price freezes, etc., but we also
know that this alone won't save these programs."
"The reality is that
more needs to be done," clarifies Dr. Copello. "We don't have much time to act.
We agree with the National ADAP Working Group - ADAP needs an additional $145
million to alleviate problems in this fiscal year, as well as an additional $283
million in the Federal Budget for FY 2004, which actually begins October 1,
2003." He explains further, "It is vital that we not forget our under-served
populations as we work towards a balanced economy. As we adopt the CDC's new
initiative on AIDS and continue current prevention efforts, we must determine
how we can provide adequate and appropriate programs and services to individuals
living with chronic diseases such as HIV/AIDS."
For more information on
Florida AIDS Action, as well as information on how to become involved in AIDS
advocacy work, please contact Florida AIDS Action by phone at: (813) 232-5886,
or by email at: information@floridaaidsaction.org
.
###
Florida AIDS Action, the only statewide nonprofit HIV/AIDS
agency in Florida, promotes social change through community planning, education,
public policy research and advocacy. For more information, call (813) 232-5886,
or visit on the web at www.floridaaidsaction.org
.
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